COVID-19 pandemisi, bilginin kritik bir kaynak olarak yönetilmesine dair etik sorunları görünür hâle getirmektedir. Bilimsel araştırma ve yayın faaliyetinin ne kadar hızlandırılabileceği kritik bir konudur. Hızlı şekilde bilgiye ulaşma ihtiyacı bulunmakla birlikte aşırı hızlanma, çalışmaların bilimsel geçerliliğini ve etik şartlara uygunluğunu olumsuz etkileyebilecektir. Aşı geliştirme çalışmaları için hız ve çalışmanın etik açıdan kabul edilebilirliği arasındaki çelişki daha belirgindir. Aşının etkinliğinin sınanması için deneklerin enfeksiyona maruz bırakılması riski artırır ve etik açıdan sorgulanabilir. Endikasyon dışı ilaç araştırmalarında, ilacı mevcut endikasyonla kullananlar ile COVID-19 hastaları arasında adil dağılım sorunu ortaya çıkar. Toplum sağlığının, ferdî hakların önüne geçebildiği bir ortamda damgalama ve mahremiyetle ilgili sorunlar ortaya çıkabilir. Araştırma ve planlama için hasta verilerine erişmeye daha çok ihtiyaç olması, potansiyel mahremiyet ihlalleri ve güç dengelerinin sıradan insanlar aleyhine bozulması anlamına gelebilecektir. Temas takibi amaçlı mobil uygulamalarla da benzer sorunlar ortaya çıkabilir. Diğer taraftan, doğru bilgilendirmeyi sağlamak için topluma yön verenlerin, halkla iletişiminin nasıl olması gerektiği de önemlidir. İnfodemi kavramı, konunun başka bir cephesini işaret etmektedir. Dolaşan doğru bilgiden fazla, yanlış bilgi olması endişe vericidir. Misenformasyon ve dezenformasyon ile mücadele, pandemi yönetiminin önemli bir ayağıdır. Bilimsel bilginin sadece nasıl üretileceğine odaklanmak ve politik ve toplumsal alandaki yansımalarını ihmal etmek hata olacaktır. İletişimi güçlendirecek bir ortak dil sağlamak için sağlık okuryazarlığının geliştirilmesi üzerinde durulmalıdır. Bu çalışmada, bilgi kavramı odak olmak üzere COVID-19 pandemisi hakkındaki etik tartışmalar ele alınmış; bilimsel bilginin üretilmesi, paylaşılması ve kullanılması ile ilgili sorunlar aydınlatılmaya çalışılmıştır. Sorunların anlaşılması, çözüm üretilmesi için ilk adımdır ve bilimsel bilginin faydalı bir toplumsal kaynak olarak devamına katkıda bulunabilecektir.
Anahtar Kelimeler: COVID-19; bilimsel araştırma ve yayınlar; damgalama; mahremiyet; mobil uygulamalar; infodemi
The COVID-19 pandemic provides an opportunity to review ethical issues regarding managing knowledge as a critical resource. Excessive acceleration of scientific research and publication activity may adversely affect the scientific validity and compliance of the studies with ethical conditions. For vaccine development studies, the contradiction between speed and ethical acceptability of the study is more pronounced. Exposing subjects to an infection to test the vaccine's effectiveness increases the risk and is ethically questionable. In studies with off-label drugs, a fair distribution problem arises between COVID-19 patients and those who use the drug with the current indication. In an environment where public health may override individual rights, stigmatization and privacy problems may arise. There is a greater need to access patient data for research and planning and that may result both regression of privacy and deterioration of power balances against ordinary people. Mobile applications used for contact tracing may also produce similar results. Society leaders should communicate properly with the public in order to provide correct information. The concept of infodemic points to another aspect of the issue. Combating misinformation and disinformation is crucial for pandemic management. It would be a mistake to focus only on how scientific knowledge is produced and neglect its political and social reflections. Health literacy should be improved, this may provide a common language that will foster multidimensional communication. In this study, ethical debates about the COVID-19 pandemic were discussed, with the concept of information being the focus, and the problems related to the production, sharing and use of scientific knowledge were tried to be elucidated. Understanding the problems is the first step in generating solutions and will contribute to the continuation of scientific knowledge as a useful social resource.
Keywords: COVID-19; scientific research and publications; stigma; privacy; mobile applications; infodemic
- Rhodes R. Justice and guidance for the COVID-19 pandemic. Am J Bioeth. 2020;20(7):163-6.[Crossref] [PubMed]
- Singer PA, Benatar SR, Bernstein M, Daar AS, Dickens BM, MacRae SK, et al. Ethics and SARS: lessons from Toronto. BMJ. 2003;327(7427):1342-4.[Crossref] [PubMed] [PMC]
- Thompson AK, Faith K, Gibson JL, Upshur RE. Pandemic influenza preparedness: an ethical framework to guide decision-making. BMC Med Ethics. 2006;7:E12.[Crossref] [PubMed] [PMC]
- Gopalan N, Yusof ANM, Cheah PY, Kaur S. Ethical standards and their application to research during public health emergencies. In: Tan HS, Tan MKM, eds. Bioethics and COVID-19: Guidance for Clinicians. 1st ed. Kuala Kumpur: Malaysian Bioethics Community; 2020. p.103-12.
- World Health Organization. Guidance for managing ethical issues in infectious disease outbreaks. World Health Organization; 2016. (Erişim tarihi: 20 Temmuz 2020)[Link]
- Biddison LD, Berkowitz KA, Courtney B, De Jong CM, Devereaux AV, Kissoon N, et al; Task Force for Mass Critical Care; Task Force for Mass Critical Care. Ethical considerations: care of the critically ill and injured during pandemics and disasters: CHEST consensus statement. Chest. 2014;146(4 Suppl):e145S-55S.[Crossref] [PubMed]
- Lipworth W, Gentgall M, Kerridge I, Stewart C. Science at warp speed: medical research, publication, and translation during the COVID-19 pandemic. J Bioeth Inq. 2020;17(4):555-61.[Crossref] [PubMed] [PMC]
- Xafis V, Schaefer GO, Labude MK, Zhu Y, Hsu LY. The perfect moral storm: diverse ethical considerations in the COVID-19 pandemic. Asian Bioeth Rev. 2020:1-19. Erratum in: Asian Bioeth Rev. 2020:1.[PubMed] [PMC]
- Shah SK, Miller FG, Darton TC, Duenas D, Emerson C, Lynch HF, et al. Ethics of controlled human infection to address COVID-19. Science. 2020;368(6493):832-4.[Crossref] [PubMed]
- Jamrozik E, Heriot GS, Selgelid MJ. Coronavirus Human Infection Challenge Studies: assessing potential benefits and risks. J Bioeth Inq. 2020;17(4):709-15.[Crossref] [PubMed] [PMC]
- Monrad JT. Ethical considerations for epidemic vaccine trials. J Med Ethics. 2020;46(7):465-9.[Crossref] [PubMed] [PMC]
- Ino H, Nakazawa E, Akabayashi A. Drug repurposing for COVID-19: ethical considerations and roadmaps. Camb Q Healthc Ethics. 2020:1-8.[Crossref] [PubMed] [PMC]
- Karabulut E, Güngör B, Ergü Y. [COVID-19: approval and permission processes of scientific research]. Anatol Clin. 2020;25(Suppl 1):120-3.[Crossref]
- Rozenberg O, Greenbaum D. Making it count: extracting real world data from compassionate use and expanded access programs. Am J Bioeth. 2020;20(7):89-92.[Crossref] [PubMed]
- Peters MA, Jandrić P, McLaren P. Viral modernity? epidemics, infodemics, and the 'bioinformational' paradigm. Educational Philosophy and Theory. 2020.[Crossref]
- Gazendam A, Ekhtiari S, Wong E, Madden K, Naji L, Phillips M, et al. The "infodemic" of journal publication associated with the novel coronavirus disease. J Bone Joint Surg Am. 2020;102(13):e64.[Crossref] [PubMed]
- Coronavirus (COVID-19) research highlights. (Erişim tarihi: 12 Eylül 2020)[Link]
- Capps B. Where does open science lead us during a pandemic? A public good argument to prioritize rights in the open commons. Camb Q Healthc Ethics. 2020:1-14.[Crossref] [PubMed] [PMC]
- Blumenthal-Barby J, Boyd K, Earp BD, Frith L, McDougall RJ, McMillan J, et al. Pandemic medical ethics. J Med Ethics. 2020;46(6):353-4.[Crossref] [PubMed]
- Timmermann C. Epistemic ignorance, poverty and the COVID-19 pandemic. Asian Bioeth Rev. 2020:1-9.[PubMed] [PMC]
- Nyugen A, Catalan-Matamoros D. Digital mis/disinformation and public engagment with health and science controversies: fresh perspectives from COVID-19. Media Commun. 2020;8(2):323-8.[Crossref]
- Jaiswal J, LoSchiavo C, Perlman DC. Disinformation, misinformation and inequality-driven mistrust in the time of COVID-19: lessons unlearned from AIDS denialism. AIDS Behav. 2020;24(10):2776-80.[Crossref] [PubMed] [PMC]
- Rafi MS. Dialogic content analysis of misinformation about COVID-19 on social media in Pakistan. Linguistics and Literature Review. 2020;6(Special Issue):1-11.[Link]
- Malaysian Bioethics Community. Ethical and responsible journalism resulting in ımpactful engagement with refugee/migrant populations during the COVID-19 pandemic. In: Tan HS, Tan MKM, eds. Bioethics and COVID-19: Guidance for Clinicians. 1st ed. Kuala Kumpur: Malaysian Bioethics Community; 2020. p.115-6.
- Cave E. COVID-19 super-spreaders: definitional quandaries and implications. Asian Bioeth Rev. 2020:1-8.[PubMed] [PMC]
- Yusof ANM, Muuti MZ, Ariffin LA, Tan MKM. Sharing information on COVID-19: the ethical challenges in the Malaysian setting. Asian Bioeth Rev. 2020:1-13.[Crossref] [PubMed] [PMC]
- Nyugen H, Nyugen A. COVID-19 misinformation and the social (media) amplification of risk: a Vietnamese perspective. Media Commun. 2020;8(2):444-7.[Crossref]
- Stephens M. A geospatial infodemic: mapping Twitter conspiracy theories of COVID-19. Dialogues Hum Geogr. 2020;10(2):276-81.[Crossref]
- Couch DL, Robinson P, Komesaroff PA. COVID-19--Extending surveillance and the panopticon. J Bioeth Inq. 2020;17:809-14.[Crossref] [PubMed] [PMC]
- Sarı M, Arslan M, Akkuş İ, Arıkan K, Güngör N, Dere F. Türkiye'nin Koronavirüs Hastalığıyla Mücadelesi. 1. Baskı. Ankara: Kamu Denetçiliği Kurumu; 2020.
- Lucivero F, Hallowell N, Johnson S, Prainsack B, Samuel G, Sharon T. COVID-19 and contact tracing apps: ethical challenges for a social experiment on a global scale. J Bioeth Inq. 2020;17(4):835-9.[Crossref] [PubMed] [PMC]
- Nijsingh N, van Bergen A, Wild V. Applying a precautionary approach to mobile contact tracing for COVID-19: the value of reversibility. J Bioeth Inq. 2020;17(4):823-7.[Crossref] [PubMed] [PMC]
- Bunker D. Who do you trust? The digital destruction of shared situational awareness and the COVID-19 infodemic. Int J Inf Manage. 2020;55:102201.[Crossref] [PubMed] [PMC]
- Lavazza A, Farina M. The role of experts in the COVID-19 pandemic and the limits of their epistemic authority in democracy. Front Public Health. 2020;8:356.[Crossref] [PubMed] [PMC]
- Datta R, Yadav AK, Singh A, Datta K, Bansal A. The infodemics of COVID-19 amongst healthcare professionals in India. Med J Armed Forces India. 2020;76(3):276-83.[Crossref] [PubMed] [PMC]
- Shu K, Bhattacharjee A, Alatawi F, Nazer TH, Ding K, Karami M, et al. Combating disinformation in a social media age. WIREs Data Mining Knowl Discov. 2020;10(6):e1385.[Crossref]
- Au H, Bright J, Howard PN. Social media misinformation and lockdown measures in democracies - coronavirus misinformation weekly briefing 27-04-2020. (Erişim tarihi: 29 Ağustos 2020)[Link]
- Baratipour M. Ethical and social challenges of COVID-19 in Iran. Eubios J Asian Int Bioeth. 2020;30(3):84-5. (Erişim tarihi: 21 Ağustos 2020)[Link]
- Nie JB. In the shadow of biological warfare: conspiracy theories on the origins of COVID-19 and enhancing global governance of biosafety as a matter of urgency. J Bioeth Inq. 2020;17(4):567-74.[Crossref] [PubMed] [PMC]
- Pennycook G, McPhetres J, Zhang Y, Lu JG, Rand DG. Fighting COVID-19 misinformation on social media: experimental evidence for a scalable accuracy-nudge intervention. Psychol Sci. 2020;31(7):770-80.[Crossref] [PubMed] [PMC]
- Baker SA, Wade M, Walsh MJ. The challenges of responding to misinformation during a pandemic: content moderation and the limitations of the concept of harm. Media International Australia. 2020;177(1):103-7.[Crossref]
- Yaşayanlar İ. [Looking at history from the days of corona 1: being a physician in the Ottoman Empire in the age of epidemics]. Toplumsal Tarih. 2020;(316):68-72.
- Pulido CM, Ruiz-Eugenio L, Redondo-Sama G, Villarejo-Carballido B. A new application of social impact in social media for overcoming fake news in health. Int J Environ Res Public Health. 2020;17(7):2430.[Crossref] [PubMed] [PMC]
- Uscinski JE, Enders AM, Klofstad C, Seelig M, Funchion J, Everett C, et al. Why do people believe COVID-19 conspiracy theories? The Harvard Kennedy School (HKS) Misinformation Review. 2020;1(Special Issue on COVID-19 and Misinformation).[Crossref]
- Brennen JS, Simon FM, Howard PN, Nielsen RK. Types, sources, and claims of COVID-19 misinformation. (Erişim tarihi: 29 Ağustos 2020)[Link]
- Eysenbach G. How to fight an infodemic: the four pillars of infodemic management. J Med Internet Res. 2020;22(6):e21820.[Crossref] [PubMed] [PMC]
- T.C. Sağlık Bakanlığı. COVID-19 Bilgilendirme Sayfası. (Erişim tarihi: 16 Ekim 2020)[Link]
- Radu R. Fighting the 'Infodemic': legal responses to COVID-19 disinformation. Social Media+Society. 2020;6(3).[Crossref] [PMC]
- Abidin C. Meme factory cultures and content pivoting in Singapore and Malaysia during COVID-19. The Harvard Kennedy School (HKS) Misinformation Review. 2020;1(Special Issue on COVID-19 and Misinformation). (Erişim tarihi: 31 Ağustos 2020)[Crossref]
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