Turkiye Klinikleri Journal of Dermatology

.: ORIGINAL RESEARCH
Neglected Victims of Psoriasis
Gözardı Edilmiş Psoriasis Mağdurları
İjlal ERTURANa, Pınar YÜKSEL BAŞAKa, Gonca Meriç BİÇİCİa, Meltem ATAYb, Selma KORKMAZa, Mehmet YILDIRIMa, Havva Hilal AYVAZa
aDepartment of Dermatology, Süleyman Demirel University Faculty of Medicine, Isparta, TURKEY
bDepartment of Psychiatry, Süleyman Demirel University Faculty of Medicine, Isparta, TURKEY
Turkiye Klinikleri J Dermatol. 2020;30(3):95-101
doi: 10.5336/dermato.2020-78969
Article Language: EN
Full Text
ABSTRACT
 Objective: The quality of life of patients is closely related to the quality of life of family members who share the same environment. The quality of life of the relatives may deteriorate more than the quality of life of patients. Except for atopic dermatitis, the impact of skin diseases on the families of patients has been largely neglected. In this study, we aimed to investigate how the quality of life of family members was affected by the psoriatic patients' disease. Material and Methods: Seventy psoriasis patients, their relatives and controls were included in the study. Psoriasis severity index (PASI), Nail Psoriasis Severity Index (NAPSI), Psoriasis Quality of life Questionnaire (PQLQ), Dermatological Diseases Family Impact Scale (DeFIS) and Hospital Anxiety and Depression Scale (HADS) were used to determine severity of the disease, and nail psoriasis, quality of life of the psoriatic patient, effect of the patient's psoriasis on the relatives' quality of life, anxiety and depression levels of the patients, respectively. Results: Of the relatives of psoriatic patients, 94.3% reported psychological problems, 57.1% reported financial burden, 61.4% reported problems with physical well-being, 51.4% had social and 81.4% had patient care need problems. The DeFIS scores of the relatives correlated with the PQLQ (r=0.413, p=0.00), HADS-depression (r=0.277, p=0.02) and NAPSI (r=0.240, p=0.046) scores of the patients. Conclusion: Our results suggest that psoriasis affects the quality of life of the patient, as well as the relatives. Family members should also be supported psychosocially for the patients' well being.

Keywords: Psoriasis; family members; quality of life; nail psoriasis severity index; psoriasis severity index; depression
ÖZET
 Amaç: Hastaların yaşam kalitesi, aynı ortamı paylaşan aile bireylerinin yaşam kalitesi ile yakından ilgilidir. Yakınların yaşam kalitesi, hastaların yaşam kalitelerinden daha fazla bozulabilir. Atopik dermatit dışında, deri hastalıklarının hastaların aileleri üzerindeki etkisi büyük ölçüde ihmal edilmiştir. Bu çalışmada aile bireylerinin yaşam kalitesinin psoriatik hastaların hastalığından nasıl etkilendiğini araştırmayı amaçladık. Gereç ve Yöntemler: Çalışmaya 70 psoriazis hastası, yakınları ve kontrolleri dahil edildi. Hastalığın şiddetini belirlemek için Psoriazis Şiddet İndeksi (PASI), Tırnak Psoriasis Şiddet İndeksi (NAPSI), Psoriasis Yaşam Kalitesi Anketi (PQLQ), Dermatolojik Hastalıklar Aile Etki Ölçeği (DeFIS) ve Hastane Anksiyete ve Depresyon Ölçeği (HADS) kullanılarak hastalık şiddeti, tırnak tutulumu, psoriatik hastanın yaşam kalitesi, hastanın sedef hastalığının yakınlarının yaşam kalitesi, hastaların anksiyete ve depresyon düzeylerine etkisi belirlendi. Bulgular: Psoriatik hasta yakınlarının %94,3'ü psikolojik sorunlar, %57,1'i maddi yük, %61,4'ü fiziksel sağlık sorunları, %51,4'ü sosyal ve %81,4'ü hasta bakım ihtiyacı sorunları bildirdi. Yakınlarının DeFIS puanları, hastaların PQLQ (r=0,413, p=0,00), HADS-depresyon (r=0,277, p=0,02) ve NAPSI (r=0,240, p=0,046) puanları ile korele idi. Sonuç: Sonuçlarımız sedef hastalığının hasta ve yakınlarının yaşam kalitesini etkilediğini düşündürmektedir. Hastaların iyiliği için aile üyeleri de psikososyal olarak desteklenmelidir.

Anahtar Kelimeler: Psoriasis; aile üyeleri; yaşam kalitesi; tırnak psoriasis şiddet indeksi; psoriazis şiddet indeksi; depresyon
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