Turkiye Klinikleri Journal of Nursing Sciences

.: REVIEW
Hidrosefalisi Olan Çocuğun Bakımına Yönelik Teknoloji Tabanlı Ebeveyn Eğitim Programlarının KomplikasyonlarıÖnlemedeki Önemi: Geleneksel Derleme
The Importance of Technology-Based Parent Education Programs for Care of Child with Hydrocephalis in Preventing Complications: A Traditional Review
Mustafa Volkan DÜZGÜNa , Ayşegül İŞLER DALGIÇa , Mehmet Saim KAZANa
aAkdeniz Üniversitesi Hemşirelik Fakültesi, Çocuk Sağlığı ve Hastalıkları Hemşireliği ABD, Antalya, Türkiye
bAkdeniz Üniversitesi Tıp Fakültesi, Cerrahi Tıp Bilimleri Bölümü, Beyin ve Sinir Cerrahi ABD, Antalya, Türkiye
Turkiye Klinikleri J Nurs Sci. 2023;15(2):529-35
doi: 10.5336/nurses.2022-93362
Article Language: TR
Full Text
ÖZET
 Hidrosefali; beyin omurilik sıvısı fizyolojisinin bozulması ve bununla ilişkili olan beyin ventriküllerinin anormal genişlemesi nedeniyle oluşur. En yaygın çocukluk çağı beyin hastalıklarından biri olan hidrosefalinin tedavisinde sıklıkla kullanılan ventriküloperitoneal şant cerrahisi sonrası önemli komplikasyonlar görülebilmektedir. Tedavinin özellikle ilk yılında şant komplikasyon riski yüksektir. Hidrosefalisi olan bir çocuğun bakımı, tedavisi ve izlemi yaşam boyu devam eden bir süreçtir. Ebeveynlerin, çocuklarını şant komplikasyonlarından koruyabilmesi ve çocuğu izleyip şant disfonksiyonu ve enfeksiyonunu erken fark edebilmesi mortalite ve morbiditeyi önleme açısından önemlidir. Bu zorlu süreçte ebeveynlerin en önemli gereksinimleri arasında eğitim ve danışmanlık yer alır. Eğitim ve danışmanlıkta hemşire, multidisipliner ekibin bir üyesi olarak hem klinik/cerrahi prosedürler sırasında bakımda, hem de aile merkezli bakım felsefesi doğrultusunda ebeveynlerin çocuğun bakımına aktif katılabilmesi ve aile-çocuk ilişkilerinin sağlıklı bir şekilde devam edebilmesinde önemli bir yere sahiptir. Dünya geneline bakıldığında, hidrosefalisi olan çocuğun bakımına ilişkin ebeveyn eğitim odaklı, girişimsel çalışmaların az sayıda olduğu görülmektedir. Bilgi iletişim teknolojilerinde meydana gelen değişimler ve maliyet dikkate alındığında, eğitim aracı olarak teknoloji tabanlı müdahaleler kullanılması önemlidir. Bu bağlamda bu derlemenin amacı, hidrosefali hakkında bilgi vererek hidrosefali nedeniyle şant takılan çocuklarda komplikasyonları önlemek, morbidite ve mortalitenin azaltılmasında ebeveynlere verilen eğitim ve danışmanlık hizmetlerinin önemini vurgulamak ve teknoloji tabanlı eğitim yöntemlerinin kullanımına dikkat çekmektir.

Anahtar Kelimeler: Hidrosefali; şant komplikasyonu; teknoloji; ebeveynler; çocuk hemşireliği
ABSTRACT
 Hydrocephalus is caused by impaired cerebrospinal fluid physiology and associated abnormal enlargement of the brain ventricles. Important complications can be seen after ventriculoperitoneal shunt surgery, which is frequently used in the treatment of hydrocephalus, one of the most common childhood brain diseases. The risk of shunt complications is high, especially in the first year of treatment. The care, treatment, and follow-up of a child with hydrocephalus is a lifelong process. It is important for parents to protect their children from shunt complications and to monitor the child and detect shunt dysfunction and infection early in terms of preventing mortality and morbidity. In this challenging process, education and counseling are among the most important needs of parents. In education and counseling, the nurse, as a member of the multidisciplinary team, has an important role both in care during clinical/surgical procedures and in the active participation of parents in the care of the child in line with the family-centered care philosophy and in the continuation of healthy family-child relationships. When we look at the world in general, it is seen that there are few educational and interventional studies on the care of the child with hydrocephalus. Considering the changes in information and communication technologies and the cost, it is important to use technologybased interventions as an educational tool. In this context, the aim of this review is to give information about hydrocephalus, to emphasize the importance of education and counseling services given to parents in preventing complications, reducing morbidity and mortality in children with shunt due to hydrocephalus, and to draw attention to the use of technology-based education methods.

Keywords: Hydrocephalus; shunt complication; technology; parents; pediatric nursing
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