Turkiye Klinikleri Journal of Nursing Sciences

.: ORIGINAL RESEARCH
Evde Stomalı Çocuğa Bakım Veren Annelerin Deneyimleri: Nitel Bir Araştırma
Experiences of Mothers Caring to Child with Stoma at Home: A Qualitative Research
Gülçin KORKMAZ YENİCEa, Figen Işık ESENAYb
aAnkara Üniversitesi Sağlık Bilimleri Enstitüsü, Ankara, Türkiye
bAnkara Üniversitesi Hemşirelik Fakültesi, Çocuk Sağlığı ve Hastalıkları Hemşireliği ABD, Ankara, Türkiye
Turkiye Klinikleri J Nurs Sci. 2023;15(1):32-42
doi: 10.5336/nurses.2021-87720
Article Language: TR
Full Text
ÖZET
 Amaç: Bu çalışma, stomalı çocuğa evde bakım veren annelerin deneyimlerini derinlemesine incelemeyi amaçlamıştır. Gereç ve Yöntemler: Çalışmada, nitel araştırma desenlerinden fenomenolojik yöntem kullanılmıştır. Çalışmanın örneklemini, çocuğu bir üniversite hastanesinde stoma açılma ameliyatı olan ve stomalı çocuğun evde bakımını sürdüren gönüllü 10 anne oluşturmuştur. Veriler; yarı yapılandırılmış görüşme formu kullanılarak, her bir katılımcı ile ortalama 20 dk yapılan derinlemesine telefon görüşmeler ile toplanmıştır. Verilerin değerlendirilmesinde içerik analizi ve betimleyici analiz kullanılmıştır. Çalışmanın yürütülebilmesi için bir devlet üniversitesini etik kurulundan etik kurul izni, kurum izni ve katılımcılardan bilgilendirilmiş onam alınmıştır. Bulgular: Anneler ile yapılan derinlemesine görüşmeler sonucu; 7 tema belirlenmiştir. Bunlar; ''Sağlık hizmetlerinden beklentinin karşılanamaması'', ''Sosyal hayattan kopma'', ''Geleceğe yönelik korku'', ''Yalnız değilmişim'', ''Mecburiyet'','' Topluma karşı güçlü durmak'' ve ''Önceliklerin değişmesi' dir. Sonuç: Bu çalışma ülkemizde evde stoma bakımı veren annelerin deneyimlerini ortaya koyan ilk çalışmadır. Elde edilen bulgular evde stomalı çocuğuna bakımı veren annelerin; sosyal hayatlarından uzaklaşma, sağlık hizmetlerinin beklentilerini karşılamaması, çocuklarının geleceklerine yönelik kaygı, kişisel bakımlarını yerine getirmede güçlük gibi farklı sorunlar yaşadığını göstermiştir. Bu çalışma; multidisipliner ve kapsamlı stoma bakım ekiplerinin kurulması, bakım vericilere planlı, sürekli ve uygulamalı eğitim, iletişim, danışmanlık, rehberlik ve psikolojik desteğin sağlanmasının ve stomalı çocukların toplumdan dışlanmasını önlemek için, toplumsal bilgilendirme ve bilinçlendirme programlarının gerekliliğini ortaya koymuştur.

Anahtar Kelimeler: Bakım verici; çocuk; evde bakım; nitel araştırma; stoma
ABSTRACT
 Objective: This study aimed to examine the experiences of mothers who gave care for a child with stoma at home thoroughly. Material and Methods: The phenomenological method, one of the qualitative research designs, was used in the research. The sample of the study consisted of 10 volunteer mothers whose child had stoma surgery in a university hospital and continued to home care. Data were collected through in-depth telephone interviews with each participant for an average of 20 minutes via a semi-structured interview form. Content analysis and descriptive analysis were used to evaluate the data. Ethics committee approval, institutional permission and informed consent from the participants were obtained from a state university ethics committee in order to conduct the study. Results: As a result of in-depth interviews with mothers; 7 themes were identified in the study; ''Failure to meet expectations from health services,'', ''Detachment from social life'', ''Fear of the future'', ''I was not alone'', ''Obligation'', ''Standing strong against society'' and ''Change of priorities''. Conclusion: The findings showed that mothers who provide stoma care at home experience different problems such as being away from their social life, health services not meeting their expectations, difficulty in performing selfcare and anxiety about the future of their children. This study revealed the necessity of establishing multidisciplinary and comprehensive stoma care teams and providing caregivers with planned, continuous and applied education, communication, counselling, guidance and psychological support, Social information and awareness programs to prevent the exclusion of children with stoma from society

Keywords: Care giver; child; home care; qualitative research; stoma
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