Amaç: Palyatif bakımda yaşanan etik sorunlara odaklanan mevcut literatürün gözden geçirilmesi ve çalışmalardan elde edilen verilerin sistematik biçimde incelenmesidir. Gereç ve Yöntemler: Çalışmanın evrenini, 1 Ocak 2008-1 Temmuz 2018 tarihleri arasında "Google Scholar", "Pubmed", "Science Direct", "Proquest", "Cochrane", "EBSCOhost", "Ovid", "Web of Science", "Clinical Key", "Google Akademik" ulusal ve uluslararası veri tabanları taranarak ulaşılan makaleler oluşturmuştur. İncelemede "etik sorunlar", "etik ikilemler", "etik çatışmalar", "etik problemler", "palyatif bakım", "palyatif bakım ünitesi", Türkçe ve İngilizce anahtar kelimeleriyle palyatif bakımda karşılaşılan etik sorunlara ilişkin verileri içeren, yayın dili Türkçe ve İngilizce olan, son 10 yılda yayımlanmış ve tam metnine ulaşılabilen makaleler seçilmiştir. Bulgular: Bu makalelerden araştırma kriterlerini karşılayan toplam 31 çalışma incelemenin örneklemini oluşturmuştur. Taramalardan elde edilen sonuçlar doğrultusunda; kaynak eksikliği, ilaç yönetimi, iletişim, hasta-hasta yakını-sağlık profesyoneli arasındaki ilişkiler, sedasyon yönetimi gibi çeşitli başlıklarda etik sorunlar yaşandığı görülmüştür. Sonuç: Bu sistematik çalışma sonucunda; palyatif bakımda çeşitli boyutlarda etik sorunların yaşandığı, bu etik sorunlardan en çok etik ikilemlerin meydana geldiği, etik ilke ve değer ihlallerinin olduğu, etik ikilemlerin genellikle tedavi sürecine ilişkin olduğu, sıklıkla da kaynak eksikliği nedeni ile etik çatışmaların yaşandığı ve özerklik ilkesinin sıklıkla ihlal edildiği görülmüştür.
Anahtar Kelimeler: Palyatif bakım; etik sorunlar; sistematik derleme
Objective: The purpose of this study was to review the present literature focusing on ethical problems in palliative care and to examine the data obtained from the studies systematically. Material and Methods: The universe of the study consisted of articles published between 1 January 2008-1 July 2018, that were accessed by screening national and international databases that were "Google Scholar", "Pubmed", "Science Direct", "Proquest", "Cochrane", "EBSCOhost", "Ovid", "Web of Science", "Clinical Key". Articles that were reached by using the keywords "ethical issues", "ethical dilemmas", "ethical conflicts", "ethical problems", " palliative care", "palliative care unit" that included data related to the reports on newborns and medication errors in newborns, that were published in English and Turkish in the last decade and that could be found in the form of full text were included in the study. Results: A total of 31 studies that met the research criteria from these articles constituted the sample of the study. According to the results obtained from the scans; it has been seen that ethical problems are experienced in various topics such as lack of resources, drug management, communication, patient-patient relatives-health professionals and sedation management. Conclusion: As a result of this systematic review; in the palliative care, it is seen that ethical problems are experienced in various dimensions, ethical issues are the most common ethical dilemmas, there are ethical principles and values violations, ethical dilemmas are generally related to the treatment process, there are often ethical conflicts due to lack of resources and the principle of autonomy is frequently violated.
Keywords: Palliative care; ethical issues; systematic review
- Demir M. [Palliative care ethics]. Turkish Journal of Medical & Surgical Intensive Care Medicine. 2016;7(2):62-6. [Crossref]
- Kıvanç MM. [Palliative care services in Turkey]. Journal of Health Sciences and Professions. 2017;4(2):132-5.
- Uslu FŞ, Terzioğlu F. [Palliative care education and organization in the world and Turkey]. Cumhuriyet Nurs J. 2015;4(2):81-90.
- Kabalak AA, Öztürk H, Çağıl H. [End of life care organization; palliative care]. Journal of Intensive Care. 2013;11(2):56-70.
- Tanrıverdi Ö, Kömürcü Ş. [Structuring in Palliative Care Units]. Türkiye Solunum Araştırmaları Derneği. 33:391-407. [Link]
- İbrahimoğlu Ö. [Ethical problems and ethical approach of the end of life patients in intensive care]. Health Care Acad J. 2017;4(3):216-20. [Crossref]
- Akpınar A, Alvur M. [Ethical and medicolegal issues in palliative care]. Turkiye Klinikleri J Fam Ned-Special Topics. 2017;8(4):292-8.
- Özçelik H. [Palliative care and approach to dying patients]. Turkiye Klinikleri J Anesth Reanim-Special Topics. 2017;10(1):87-93.
- Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009;6(7):e1000097. [Crossref] [PubMed] [PMC]
- Anderson BA, Kralik D. Palliative care at home: carers and medication management. Palliat Support Care. 2008;6(4):349-56. [Crossref] [PubMed]
- Gielen J, Gupta H, Rajvanshi A, Bhatnagar S, Mishra S, Chaturvedi AK, et al. The attitudes of Indian palliative-care nurses and physicians to pain control and palliative sedation. Indian J Palliat Care. 2011;17(1):33-41. [Crossref] [PubMed] [PMC]
- Nilsson Å, Tengvall C. One last opportunity: Swedish nurses? experiences of palliative sedation. Journal of Hospice & Palliative Nursing. 2013;15(6):E1-5. [Crossref]
- Gielen J, Bhatnagar S, Mishra S, Chaturvedi AK, Gupta H, Rajvanshi A, et al. Can curative or life-sustaining treatment be withheld or withdrawn? The opinions and views of Indian palliative-care nurses and physicians. Med Health Care Philos. 2011;14(1):5-18. [Crossref] [PubMed]
- Blondeau D, Dumont S, Roy L, Martineau I. Attitudes of quebec doctors toward sedation at the end of life: an exploratory study. Palliat Support Care. 2009;7(3):331-7. [Crossref] [PubMed]
- Reitinger E, Heimerl K. Ethics and gender issues in palliative care in nursing homes: an Austrian participatory research project. Int J Older People Nurs. 2014;9(2):131-9. [Crossref] [PubMed]
- Bollig G, Schmidt G, Rosland JH, Heller A. Ethical challenges in nursing homes--staff?s opinions and experiences with systematic ethics meetings with participation of residents? relatives. Scand J Caring Sci. 2015;29(4):81023. [Crossref] [PubMed]
- Cheon J, Coyle N, Wiegand DL, Welsh S. Ethical issues experienced by hospice and palliative nurses. Journal of Hospice & Palliative Nursing. 2015;17(1):7-13. [Crossref]
- Preshaw DH, McLaughlin D, Brazil K. Ethical issues in palliative care for nursing homes: development and testing of a survey instrument. J Clin Nurs. 2018;27(3-4):e678-87. [Crossref] [PubMed]
- Gardiner C, Barnes S, Small N, Gott M, Payne S, Seamark D, Halpin D. Reconciling informed consent and ?do no harm?: ethical challenges in palliative-care research and practice in chronic obstructive pulmonary disease. Palliat Med. 2010;24(5):469-72. [Crossref] [PubMed]
- Gysels M, Evans CJ, Lewis P, Speck P, Benalia H, Preston NJ, et al. MORECare research methods guidance development: recommendations for ethical issues in palliative and end-of-life care research. Palliat Med. 2013;27(10):908-17. [Crossref] [PubMed]
- André B, Ringdal GI, Loge JH, Rannestad T, Kaasa S. Implementation of computerized technology in a palliative care unit. Palliat Supporti Care. 2009;7(1):57-63. [Crossref] [PubMed]
- McCloskey S, Taggart L. How much compassion have I left? An exploration of occupational stress among children?s palliative care nurses. Int J Palliat Nurs. 2010;16(5):233-40. [Crossref] [PubMed]
- Gaudine A, LeFort SM, Lamb M, Thorne L. Ethical conflicts with hospitals: the perspective of nurses and physicians. Nurs Ethics. 2011;18(6):756-66. [Crossref] [PubMed]
- Reid F. Grief and the experiences of nurses providing palliative care to children and young people at home. Nurs Child Young People. 2013;25(9):31-6. [Crossref] [PubMed]
- Eriksson H, Andersson G, Olsson L, Milberg A, Friedrichsen M. Ethical dilemmas around the dying patient with stroke: a qualitative interview study with team members on stroke units in Sweden. J Neurosci Nurs. 2014;46(3): 162-70. [Crossref] [PubMed]
- Piot E, Leheup BF, Goetz C, Quilliot D, Niemier JY, Wary B, et al. Caregivers confronted with the withdrawal of artificial nutrition at the end of life: prevalence of and reasons for experienced difficulties. Am J Hosp Palliat Med. 2015;32(7):732-7. [Crossref] [PubMed]
- Nisha C, Rose JA. Ethical Dilemmas in Care of Patients Admitted to a Palliative Care Unit in South India: A Qualitative Study. Int J Health Sci Res. 2015;5(4):225-9.
- Valentini E, Giantin V, Voci A, Iasevoli M, Zurlo A, Pengo V, et al. Artificial nutrition and hydration in terminally ill patients with advanced dementia: opinions and correlates among Italian physicians and nurses. J Palliat Med. 2014;17(10):1143-9. [Crossref] [PubMed]
- Muldrew Née Preshaw DHL, McLaughlin D, Brazil K. Ethical issues experienced during palliative care provision in nursing homes. Nurs Ethics. 2018;1:969733018779218. [Crossref] [PubMed]
- Robinson CA, Pesut B, Bottorff JL. Issues in rural palliative care: views from the countryside. J Rural Health. 2010;26(1):78-84. [Crossref] [PubMed]
- Jankowski JB. Professional boundary issues in pediatric palliative care. Am J Hosp Palliat Med. 2014;31(2):161-5. [Crossref] [PubMed]
- Pavlish C, Brown-Saltzman K, Jakel P, Fine A. The nature of ethical conflicts and the meaning of moral community in oncology practice. Oncol Nurs Forum. 2014;41(2):130-40. [Crossref] [PubMed]
- White KR, Roczen ML, Coyne PJ, Wiencek C. Acute and critical care nurses? perceptions of palliative care competencies: a pilot study. J Contin Educ Nurs. 2014;45(6):265-77. [Crossref] [PubMed]
- Hernández-Marrero P, Pereira SM, Carvalho AS. Ethical decisions in palliative care: interprofessional relations as a burnout protective factor? Results from a mixed-methods multicenter study in Portugal. Am J Hosp Palliat Med. 2016;33(8):723-32. [Crossref] [PubMed]
- Chih AH, Su P, Hu WY, Yao CA, Cheng SY, Lin YC, et al. The changes of ethical dilemmas in palliative care a lesson learned from comparison between 1998 and 2013 in Taiwan. Medicine (Baltimore). 2016;95(1):e2323. [Crossref] [PubMed] [PMC]
- Bollig G, Rosland JH, Gjengedal E, Schmidt G, May AT, Heller A. A European multicenter study on systematic ethics work in nursing homes. Scand J Caring Sci. 2017;31(3):587601. [Crossref] [PubMed]
- De Vries K, Plaskota M. Ethical dilemmas faced by hospice nurses when administering palliative sedation to patients with terminal cancer. Palliat Support Care. 2017;15(2):14857. [Crossref] [PubMed]
- Sandman L, Molander U, Benkel I. Developing organisational ethics in palliative care. Nurs Ethics. 2017;24(2):138-50. [Crossref] [PubMed]
- Lind S, Wallin L, Brytting T, Fürst CJ, Sandberg J. Implementation of national palliative care guidelines in Swedish acute care hospitals: a qualitative content analysis of stakeholders? perceptions. Health Policy. 2017;121 (11):1194-201. [Crossref] [PubMed]
- Akin Korhan E, Üstün Ç, Uzelli Yilmaz D. Practices in human dignity in palliative care: a qualitative study. Holist Nurs Pract. 2018;32 (2):71-80. [Crossref] [PubMed]
- Towers A, MacDonald N, Wallace E. Ethical issues in palliative care. Views of patients, families, and nonphysician staff. Can Fam Physician. 2003;49:1626-31.
- Olson DP, Windish DM. Communication discrepancies between physicians and hospitalized patients. Arch Intern Med. 2010;170(15): 1302-7. [Crossref] [PubMed]
- Akgün-Çitak E, Avci S, Basmaci Ö, Durukan İ. [Investigating the communication behaviours of nurses towards patients defined as difficult by nurses in a university hospital]. HEMAR-G. 2011;13(1):35-44.
- Sirch L, Salvador L, Palese A. Communication difficulties experienced by deaf male patients during their in-hospital stay: findings from a qualitative descriptive study. Scand J Caring Sci. 2017;31(2):368-77. [Crossref] [PubMed]
- Aydın BO, Şahin E. [A survey on patient relatives-determined communication barriers according to various variables in hospitals]. Journal of Communication Theory and Research. 2018;(46):59-75.
- Schaffer MA. Ethical problems in end-of-life decisions for elderly Norwegians. Nurs Ethics. 2007;14(2):242-57. [Crossref] [PubMed]
- Elçiligil A, Bahar Z, Beşer A, Mızrak B, Bahçelioğlu D, Demirtaş D, et al. [Ethical dilemmas which are faced by nurses]. Anadolu Journal of Nursing and Health Sciences. 2011;14(2): 52-60.
- Utlu N. [Ethical approach and ethical dilemmas of nurses working in hospitals]. Journal of Istanbul Aydın University. 2016;8(29):1735. [Crossref]
- Enes SP, de Vries K. A survey of ethical issues experienced by nurses caring for terminally ill elderly people. Nurs Ethics. 2004;11(2):150-64. [Crossref] [PubMed]
- Chiu TY, Hu WY, Cheng SY, Chen CY. Ethical dilemmas in palliative care: a study in Taiwan. J Med Ethics. 2000;26(5):353-7. [Crossref] [PubMed] [PMC]
- Georges JJ, Grypdonck M. Moral problems experıenced by nurses when caring for terminally ill people: a literature review. Nurs Ethics. 2002;9(2):155-78. [Crossref] [PubMed]
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