.: ORİJİNAL ARAŞTIRMA
Being an Informal Caregiver in Bone Marrow Transplant Unit: A Qualitative Study
Kemik İliği Transplantasyon Ünitesinde Bakım Verici Olmak: Kalitatif Çalışma
Turkiye Klinikleri J Nurs Sci. 2022;14(4):1135-43
doi: 10.5336/nurses.2022-89812
Makale Dili: EN
Tam Metin
ABSTRACT
Objective: The bone marrow transplantation (BMT) units are high-dependency areas, with patients requiring care. Patients in BMT are in need of intensive care due to the treatment applied and complications related to the treatment. This study explores informal caregivers' experiences and perceptions in (BMT) unit. Material and Methods: Individual interviews were conducted in a semi-structured form. Theoretical thematic analysis was used to analyze the interview data. A qualitative design was used to describe the caregivers' experiences in the BMT unit, the caregiving process, and what they felt while giving care, and their expectations. Individual interviews were conducted in a semi-structured form. 24 informal caregivers hospitalized in the BMT of a university hospital who agreed to participate in the study were included in İstanbul, Türkiye. Results: Three major and nine themes emerged from the data analysis: (1) caregiver's perception, (1a) daily life, (1b) difficulties experienced, (1c) social support, (1d) health problems; (2) thoughts and experiences (2a) feelings, (2b) changes in relationships, (2c) what if I became ill; (3) expectations; (3a) expectations from the future, (3b) expectations from institutions. Conclusion: It was understood in this study that the informal caregivers had difficulties while maintaining their daily lives, felt alone in the process of providing care, experienced a set of psychological problems after the diagnosis, were optimistic about the future, and had expectations from institutions.
Keywords: Bone marrow transplantation; informal caregiver; experiences; qualitative study
Objective: The bone marrow transplantation (BMT) units are high-dependency areas, with patients requiring care. Patients in BMT are in need of intensive care due to the treatment applied and complications related to the treatment. This study explores informal caregivers' experiences and perceptions in (BMT) unit. Material and Methods: Individual interviews were conducted in a semi-structured form. Theoretical thematic analysis was used to analyze the interview data. A qualitative design was used to describe the caregivers' experiences in the BMT unit, the caregiving process, and what they felt while giving care, and their expectations. Individual interviews were conducted in a semi-structured form. 24 informal caregivers hospitalized in the BMT of a university hospital who agreed to participate in the study were included in İstanbul, Türkiye. Results: Three major and nine themes emerged from the data analysis: (1) caregiver's perception, (1a) daily life, (1b) difficulties experienced, (1c) social support, (1d) health problems; (2) thoughts and experiences (2a) feelings, (2b) changes in relationships, (2c) what if I became ill; (3) expectations; (3a) expectations from the future, (3b) expectations from institutions. Conclusion: It was understood in this study that the informal caregivers had difficulties while maintaining their daily lives, felt alone in the process of providing care, experienced a set of psychological problems after the diagnosis, were optimistic about the future, and had expectations from institutions.
Keywords: Bone marrow transplantation; informal caregiver; experiences; qualitative study
ÖZET
Amaç: Kemik iliği transplantasyonu (KİT) üniteleri, hastaların bakıma ihtiyaç duydukları ve bağımlılıklarının yüksek oldukları alanlardır. KİT ünitesindeki hastalar uygulanan tedavi ve tedaviye bağlı komplikasyonlar nedeniyle yoğun bakıma muhtaçtır. Bu çalışmada, KİT ünitesindeki informal bakım vericilerin deneyim ve algılarını araştırmak amaçlandı. Gereç ve Yöntemler: Bireysel görüşmeler yarı yapılandırılmış formla gerçekleştirilmiştir. Görüşme verilerinin analizinde teorik tematik analiz kullanılmıştır. Bakım vericilerin KİT ünitesindeki deneyimlerini, bakım verme sürecini, bakım verirken hissettiklerini ve beklentilerini betimlemek için nitel bir tasarım kullanılmıştır. Bireysel görüşmeler, yarı yapılandırılmış formla gerçekleştirilmiştir. İstanbul'da bir üniversite hastanesinin KİT ünitesinde yatan ve çalışmaya katılmayı kabul eden 24 informal bakım verici dâhil edildi. Bulgular: Veri analizinden 3 ana ve ve 9 tema ortaya çıkmıştır: (1) bakım verenin algısı, (1a) günlük yaşam, (1b) yaşanan zorluklar, (1c) sosyal destek, (1d) sağlık sorunları; (2) düşünceler ve deneyimler, (2a) duygular, (2b) ilişkilerde değişiklikler, (2c) hasta olursam; (3) beklentiler, (3a) gelecekten beklentiler, (3b) kurumlardan beklentiler. Sonuç: Bu çalışmada, informal bakım verenlerin günlük yaşamlarını sürdürmekte zorlandıkları, bakım verme sürecinde kendilerini yalnız hissettikleri, tanı konulduktan sonra birtakım psikolojik sorunlar yaşadıkları, geleceğe yönelik iyimser oldukları ve kurumlardan beklentilerinin olduğu anlaşılmıştır.
Anahtar Kelimeler: Kemik iliği transplantasyonu; informal bakım verici; deneyimler; kalitatif çalışma
Amaç: Kemik iliği transplantasyonu (KİT) üniteleri, hastaların bakıma ihtiyaç duydukları ve bağımlılıklarının yüksek oldukları alanlardır. KİT ünitesindeki hastalar uygulanan tedavi ve tedaviye bağlı komplikasyonlar nedeniyle yoğun bakıma muhtaçtır. Bu çalışmada, KİT ünitesindeki informal bakım vericilerin deneyim ve algılarını araştırmak amaçlandı. Gereç ve Yöntemler: Bireysel görüşmeler yarı yapılandırılmış formla gerçekleştirilmiştir. Görüşme verilerinin analizinde teorik tematik analiz kullanılmıştır. Bakım vericilerin KİT ünitesindeki deneyimlerini, bakım verme sürecini, bakım verirken hissettiklerini ve beklentilerini betimlemek için nitel bir tasarım kullanılmıştır. Bireysel görüşmeler, yarı yapılandırılmış formla gerçekleştirilmiştir. İstanbul'da bir üniversite hastanesinin KİT ünitesinde yatan ve çalışmaya katılmayı kabul eden 24 informal bakım verici dâhil edildi. Bulgular: Veri analizinden 3 ana ve ve 9 tema ortaya çıkmıştır: (1) bakım verenin algısı, (1a) günlük yaşam, (1b) yaşanan zorluklar, (1c) sosyal destek, (1d) sağlık sorunları; (2) düşünceler ve deneyimler, (2a) duygular, (2b) ilişkilerde değişiklikler, (2c) hasta olursam; (3) beklentiler, (3a) gelecekten beklentiler, (3b) kurumlardan beklentiler. Sonuç: Bu çalışmada, informal bakım verenlerin günlük yaşamlarını sürdürmekte zorlandıkları, bakım verme sürecinde kendilerini yalnız hissettikleri, tanı konulduktan sonra birtakım psikolojik sorunlar yaşadıkları, geleceğe yönelik iyimser oldukları ve kurumlardan beklentilerinin olduğu anlaşılmıştır.
Anahtar Kelimeler: Kemik iliği transplantasyonu; informal bakım verici; deneyimler; kalitatif çalışma
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