Amaç: Bu çalışmanın amacı, serebral palsili (SP) çocuğa sahip annelerin depresyon düzeyi ile çocuğun sağlıkla ilgili yaşam kalitesi arasındaki ilişkiyi araştırmaktır. Gereç ve Yöntemler: Kesitsel olarak tasarlanmış olan çalışmamıza 7-16 yaş aralığında 183 çocuk ve anneleri (SP'li grup n=122; sağlıklı grup n=61) dâhil edildi. Çalışmaya alınan sağlıklı ve SP'li çocukların yaşam kalitesini değerlendirmek için Çocuk Sağlık Anketi Ebeveyn Formu (CHQ-PF50) kullanıldı. Annelerin depresyon düzeyleri Beck Depresyon Envanteri (BDE) ile değerlendirildi. Annelerin depresyon düzeyleri normal-minimal depresyon (<17) ve orta-şiddetli depresyon (17 ve üstü) olarak iki gruba ayrıldı. Nicel verilerin karşılaştırılmasında Mann-Whitney U testi; nitel verilerin karşılaştırılmasında ise ki-kare testi kullanıldı. CHQ-PF50 alt parametreleri ve BDE sonuçları arasındaki ilişki Spearman korelasyon testi ile analiz edildi. Bulgular: SP'li çocuğa sahip annelerin depresyon düzeyleri sağlıklı çocuğa sahip annelerin depresyon düzeylerinden yüksekti (p=0,012). SP'li çocuğa sahip annelerin BDE skorları ile CHQ'nun alt bölümlerinden fiziksel sağlık nedeni ile rol/sosyal kısıtlamalar arasında zayıf negatif yönde anlamlı ilişki (p<0,05) varken, ağrı ve rahatsızlık, mental sağlık, genel sağlık algılaması, ebeveyn üzerindeki emosyonel etki, aile aktiviteleri ve aile uyumu alt bölümleri ile arasında orta düzeyde negatif yönde anlamlı ilişki bulundu (p<0,05). Orta-şiddetli depresyon düzeyine sahip annelerin çocuklarının yaşam kalitesi alt bölümlerinden genel sağlık, ağrı ve rahatsızlık, mental sağlık, öz saygı, genel sağlık algılaması, aile aktiviteleri ve aile uyumu normal-minimal depresyon düzeyine sahip annelerin çocuklarından düşük bulundu (p<0,05). Sonuç: SP'li çocuğun ağrı düzeyi, mental ve genel sağlık durumu, öz saygısı ve aile bireylerinin uyumu annenin depresyon düzeyi ile ilişkide olan önemli faktörler arasındadır. Gelecekteki çalışmalar, annenin depresyon düzeyini etkileyebilecek diğer faktörleri araştırmalıdır.
Anahtar Kelimeler: Serebral palsi; yaşam kalitesi; anneler; depresyon; çocuk
Objective: This study was aimed to investigate the relationship between depression level of mothers who had children with cerebral palsy (CP) and health related quality of life of children. Material and Methods: This sectional study was included 183 children at age ranged 7-16 years and their mothers (CP group n=122; health group n=61). Child Health Questionnaire-Parent Form (CHQ-PF50) was used to assess the quality of life of children with CP and health peers who had participated in the study. Depression levels of mothers were assessed with Beck Depression Inventory (BDI). The depression levels of mothers was separated two groups as normal-minimal (<17) and moderate-severe (17 and higher). Mann-Whitney U test was used to compare the quantitative data and ki-square test was used to analyse qualitative data. The correlation between CHQ-PF50 subdimensions and BDI scores was analysed with Spearman correlation. Results: The depression levels of mothers who had children with CP were higher than the mothers who had health children (p=0.012). There was poor significant correlation between BDI scores of mothers who had children with CP and the sub-dimensions of role/social limitations physical (p<0.05) and also moderate negative significant correlation was found in pain, general health perception, parental impact emotional, family activities and family cohesion (p<0.05). The quality of life scores of children with mothers who had moderate-severe depression levels was lower than children with mothers who had normal-minimal depression levels in general health, pain, mental health, self esteem, general health perception, family activities and family cohesion (p<0.05). Conclusion: As a conclusion, the pain level, mental and general health, self esteem and family cohesion of children with CP were the essential related factors with the depression levels of mothers. Future studies should investigate the other factors that affected the depression levels of mothers.
Keywords: Cerebral palsy; quality of life; mothers; depression; child
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