Turkiye Klinikleri Journal of Health Sciences

.: ORIGINAL RESEARCH
Palyatif Bakım Hastalarına Bakım Veren Bireylerin Palyatif Bakımda Fizyoterapi ve Rehabilitasyon Uygulamaları Hakkındaki Bilgi ve Farkındalık Düzeyleri: Kesitsel Bir Çalışma
Knowledge and Awareness Levels About Physiotherapy and Rehabilitation Practices in Palliative Care of Individuals Who Care for Palliative Care Patients: A Cross-Sectional Study
Gülşah BARĞI a, Yasemin KAYAGİL KOLSUZ b, Fidan YILMAZc, Tuğçe TURGUT d, Esma BÖYÜKDOĞAN e , Gamze KARAHANe, Gözde NALCIOĞLUf
aİzmir Demokrasi Üniversitesi Sağlık Bilimleri Fakültesi, Fizyoterapi ve Rehabilitasyon Bölümü, İzmir, TÜRKİYE
bAnkara Pursaklar Devlet Hastanesi, Palyatif Bakım Kliniği, Ankara, TÜRKİYE
cKırşehir Ahi Evran Üniversitesi Fizik Tedavi ve Rehabilitasyon Yüksekokulu, Kırşehir, TÜRKİYE
dAnkara Şehir Hastanesi, Fizik Tedavi ve Rehabilitasyon Hastanesi, Ankara, TÜRKİYE
eSaygı Esat Özel Eğitim ve Rehabilitasyon Merkezi, Ankara, TÜRKİYE
fCan Yaren Özel Eğitim ve Dil Konuşma Merkezi, Ankara, TÜRKİYE
Turkiye Klinikleri J Health Sci. 2022;7(1):127-37
doi: 10.5336/healthsci.2020-80853
Article Language: TR
Full Text
ÖZET
 Amaç: Palyatif bakım hastalarında ve bakım veren bireylerde fiziksel ve/veya ruhsal problemler görülebilmektedir. Ancak bakım verenlerin, palyatif rehabilitasyon hakkında bilgi ve farkındalık düzeyleri belirsizdir. Bu yüzden bu çalışmada, palyatif bakım veren bireylerin palyatif rehabilitasyon uygulamaları hakkındaki bilgi ve farkındalık düzeylerini ve fizyoterapiste ulaşabilme durumlarını araştırmak amaçlandı. Gereç ve Yöntemler: Çalışmaya palyatif bakım kliniklerinde yatmakta olan hastalara bakım veren 100 birey (48,93±11,04 yıl) dâhil edildi. Bu bireylere maddeleri araştırmacılar tarafından oluşturulan anket yüz yüze görüşme şeklinde uygulandı. Anket 3 bölüm ve 40 maddeden oluşmaktadır. Birinci (13 madde), 2. (20 madde) ve 3. (7 madde) bölümler sırasıyla bakım veren bireylerin fizyoterapi uygulamaları hakkındaki farkındalık düzeyini, bilgi düzeyini ve fizyoterapiste ulaşılabilirlik durumunu ölçen maddeler içermektedir. Her bir madde tamamen katılıyorum (5), katılıyorum (4), kararsızım (3), katılmıyorum (2) ve hiç katılmıyorum (1) şeklinde puanlanmıştır. Anket için uygun geçerlik ve güvenirlik analizleri yapılmıştır. Bulgular: Birinci bölüm (13 madde, Cronbach alfa: 0,826, X±SS=4,02±0,54) yüksek güvenilirdir, maddeler arası iç tutarlılık yüksektir; bakım verenlerin farkındalık düzeyleri yüksekti. İkinci bölüm (11 madde, Cronbach alfa: 0,899, X±SS=4,0±0,6) yüksek güvenilirdir, maddeler arası iç tutarlılık yüksektir; bakım verenlerin bilgi düzeyleri yüksek/olumlu bulundu. Üçüncü bölüm (5 madde; Cronbach alfa: 0,770, X±SS=2,3±0,77) yüksek güvenilirdir, maddeler arası iç tutarlılık yüksektir; bakım verenlerin fizyoterapiste ulaşabilmeye ilişkin görüşleri olumsuz düzeyde bulundu. Sonuç: Ülkemizde palyatif bakım kliniğinde yatmakta olan hastalara bakım veren bireylerin, fizyoterapi uygulamaları hakkındaki farkındalık ve bilgi düzeyleri yüksektir. Ancak bu kliniklerde fizyoterapiste erişilebilirliğe dair görüşler olumsuzdur. Palyatif bakım hizmetleri içerisinde fizyoterapi ve rehabilitasyon uygulamalarına olan ihtiyacın belirlenebilmesi için bu kliniklerde geçerli ve güvenilir olan bu anket kullanılmalıdır.

Anahtar Kelimeler: Palyatif bakım; rehabilitasyon; bakıcılar
ABSTRACT
 Objectives: Physical and/or psychological problems may be observed in palliative care (PC) patients and caregivers. However, knowledge and awareness levels of caregivers about palliative rehabilitation are unclear. So, investigating knowledge and awareness levels of palliative caregivers about palliative rehabilitation interventions and accessibility status to a physiotherapist was aimed in this study. Material and Methods: 100 individuals caring for patients hospitalized in PC-clinics (48.93±11.04 years) were included in the study. A questionnaire, items of which were prepared by researchers, was applied to individuals as a face-to-face interview. This questionnaire consists of 3 sections and 40 items. The first (13-item), second (20-item) and third (7-item) sections respectively contains items that measure awareness level of caregivers about physiotherapy interventions, knowledge level and accessibility status to physiotherapist. Each item is scored as totally agree (5), agree (4), undecided (3), disagree (2), and strongly disagree (1). Appropriate reliability and validity analyses for the questionnaire were conducted. Results: The first section (13-item, Cronbach's alpha: 0.826, X±SD=4.02±0.54) is highly reliable, internal consistency between items is high; awareness level of caregivers was high. The second section (11-item, Cronbach's alpha: 0.899, X±SD=4.0±0.6) is highly reliable, internal consistency between items is high; knowledge level of caregivers was found to be high/positive. The third section (5-item, Cronbach's alpha: 0.770, X±SD=2.3±0.77) is highly reliable, internal consistency between items is high; caregivers' views on reaching to physiotherapists were found to be negative. Conclusion: In our country, awareness and knowledge levels about physiotherapy interventions is high in individuals caring for patients hospitalized in PC-clinics. However, opinions about accessibility to physiotherapist in PC-clinics are negative. To determine the need for physiotherapy and rehabilitation practices within palliative care services, use of this valid and reliable questionnaire should be used in these clinics.

Keywords: Palliative care; rehabilitation; caregivers
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