Nursing Care of Children with Chronic Illness

.: PREFACE
ÖN SÖZ
PREFACE
Prof. Dr. Hüsniye ÇALIŞIR
Aydın Adnan Menderes Üniversitesi Hemşirelik Fakültesi, Çocuk Sağlığı ve Hastalıkları Hemşireliği AD, Aydın, Türkiye
Article Language: TR
Süreğen hastalıklar; çocuğun fiziksel sağlığının yanında duygusal, sosyal, ekonomik ve spiritüel iyilik hâlini de etkileyen, uzun süreli ve genellikle yaşam boyu süren sağlık sorunlarıdır. Süreğen hastalığa sahip olmak çocukların ve ailelerinin yaşamında önemli değişikliklere yol açabilir. Bu yüzden süreğen hastalığı olan çocukların ve onlarla birlikte ailelerinin gereksinimlerine yönelik bütüncül sağlık bakımı almaları oldukça önemlidir. Bu kitabı hazırlamadaki amacımız, süreğen sağlık sorunu yaşayan çocuk ve onların ailelerinin önemli gereksinimleri ve hemşirelik bakımı konusunda güncel bilgileri sunmaktır.

Bu kitap; başta hemşireler olmak üzere sağlık profesyonelleri ve bakım vericiler için bu sürecin daha iyi anlaşılması ve yönetilebilmesine katkı sağlayacak güncel bilgiler içermektedir. Bu kitabın bölümlerinde; Türkiye ve dünyada süreğen hastalıkların durumu, süreğen hastalığın çocuk ve aile üzerine etkileri, süreğen hastalığı olan çocukların yaşam kalitesi, hastanedeki bakımı, bütüncül hemşirelik bakımı, öz bakımının desteklenmesi ve ailesinin güçlendirilmesi konuları yer almaktadır. Ayrıca kitapta; süreğen hastalığı olan çocukların ayrımcılık ve damgalanmaya maruz kalması, ruh sağlığını iyileştirmeye yönelik müdahaleler, okul sağlığı hizmetleri, palyatif bakımı, teknolojiye bağımlı çocuğun evde bakımı, teknoloji temelli uygulamalar ve inovatif yaklaşımlar ile sanat müdahaleleri konularına yer verdik.

Bu kitabın hazırlanmasında emeği geçen bütün yazarlara, değerli katkılarından dolayı çok teşekkür ederiz.

Kitabın siz saygıdeğer okurlarımıza, sevgili çocuklar ve ailelerine yararlı olması dileğiyle...

Prof. Dr. Hüsniye ÇALIŞIR
Editör
Aydın Adnan Menderes Üniversitesi Hemşirelik Fakültesi, Çocuk Sağlığı ve Hastalıkları Hemşireliği AD, Aydın, Türkiye
Chronic diseases are long-term and often lifelong health problems that affect a child's emotional, social, economic and spiritual well-being as well as their physical health. Having a chronic disease can lead to significant changes in the lives of children and their families. Therefore, it is very important that children with chronic diseases and their families receive holistic health care that addresses their needs. Our aim in preparing this book is to provide up-to-date information on the important needs and nursing care of children with chronic health problems and their families.

This book contains up-to-date information that will contribute to a better understanding and management of this process for health professionals and caregivers, especially nurses. The chapters of this book include the status of chronic diseases in Turkiye and the world, the effects of chronic diseases on the child and family, quality of life of children with chronic diseases, care in the hospital, holistic nursing care, supporting self-care and empowering the family. In addition, the book covers discrimination and stigmatization of children with chronic diseases, interventions to improve mental health, school health services, palliative care, home care of technology-dependent children, technology-based practices and innovative approaches, and art interventions.

We would like to thank all the authors who contributed to the preparation of this book for their valuable contributions.

We hope that the book will be useful to you, our esteemed readers, dear children and their families...

Prof. Dr. Hüsniye ÇALIŞIR
Editor
Aydın Adnan Menderes University Faculty of Nursing, Department of Pediatric Nursing, Aydın, Türkiye

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