Turkiye Klinikleri Journal of Pediatrics

.: ORIGINAL RESEARCH
Living with Type 1 Diabetes: A Qualitative Study
Tip 1 Diyabet ile Yaşamak: Nitel Bir Çalışma
Bakiye PINARa, Türkan TURANb
aPamukkale University Hospital, Denizli, TURKIYE
bDepartment of Nursing, Division of Pediatric Nursing, Pamukkale University Faculty of Health Sciences, Denizli, TURKIYE
Turkiye Klinikleri J Pediatr. 2022;31(1):1-8
doi: 10.5336/pediatr.2020-80212
Article Language: EN
Full Text
ABSTRACT
 Objective: Type 1 diabetes is an absolute insulin-dependent autoimmune disease. It is generally seen in children and adolescents and its prevalence is increasing day by day. The management of a chronic disease during adolescence may affect the individual's biological, psychological and socialization processes. Purpose: This study was conducted to determine how Type 1 diabetes affected the lives of adolescents. Matreial and Methods: This qualitative study is of a phenomenological type. The study covered a total of 19 adolescents (14 girls and 5 boys) in 12 to 18 age group at a Pamukkale university hospital, who were followed up with the diagnosis of type 1 diabetes. In the study, the data were collected by using the semi-structured interview form and through the in-depth interview method. Interviews were recorded and ranged from a minimum of 15 minutes to a maximum of 45 minutes. The data obtained were evaluated using the content analysis method. Results: Adolescents with type 1 diabetes were affected in terms of experience, emotion and perception. Conclusion: As a result of this study, it has been found that type 1 diabetes affects adolescents' lives in many ways. In the follow-up of the disease, healthcare professionals should be aware of the factors that negatively affect the quality of life of adolescents by reducing their compliance with the disease and treatment, and should include the elimination of these factors or keeping them under control in their care.

Keywords: Adolescents; qualitative study; Type 1 diabetes mellitus
ÖZET
 Amaç: Tip 1 diyabet mutlak insüline bağlı otoimmün bir hastalıktır. Genellikle çocuklarda ve ergenlerde görülmekte olup her geçen gün yaygınlığı da artmaktadır. Adölesan döneminde kronik bir hastalığın yönetimi bireyin biyolojik, psikolojik aynı zamanda sosyalleşme süreçlerini de etkileyebilir. Amaç: Bu çalışma; tip 1 diyabetin adölesanların yaşamlarını nasıl etkilediğini belirlemek amacıyla yapılmıştır. Gereç ve Yöntemler: Araştırma fenomolojik tipte niteliksel olarak yapılmıştır. Pamukkale üniversite hastanesinde, tip 1 diyabet tanısı ile takibi yapılan 12-18 yaş grubu, 14 kız ve 5 erkek olmak üzere 19 adölesanı kapsamaktadır. Çalışmada veriler yarı-yapılandırılmış görüşme formu kullanılarak derinlemesine görüşme yöntemi ile toplanmıştır. Görüşmeler kayıt altına alınmıştır, en az 15 dakika ile en fazla 45 dakika arasında değişmiştir. Elde edilen veriler içerik analizi yöntemiyle değerlendirilmiştir. Bulgular: Tip 1 diyabet ile yaşayan adölesanlar deneyim,duygu ve algı yönünden etkilenmişlerdir. Sonuç: Bu çalışmanın sonucunda tip 1 diyabet hastalığının adölesanların yaşamlarını birçok yönden etkilediği bulunmuştur. Hastalığın takibinde sağlık çalışanları adolesanların hastalığa ve tedaviye uyumlarını azaltarak yaşam kalitelerini olumsuz etkileyen faktörlerin farkında olmalı ve bakımında bu faktörlerin ortadan kaldırılması veya denetim altında tutulması konusuna yer vermelidir.

Anahtar Kelimeler: Adölesan; nitel araştırma; Tip 1 diabetes mellitus
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