Turkiye Klinikleri Journal of Nursing Sciences

.: ORIGINAL RESEARCH
Experiences of Common Unmet Psychosocial Care Needs of Hospitalized Individual with Hematological Cancers and Family Caregiver Dyads: A Qualitative Study
Hastanede Yatan Hematolojik Kanseri Olan Birey ve Bakım Veren Çiftlerin Karşılanmamış Ortak Psikososyal Bakım Gereksinimlerine İlişkin Deneyimleri: Nitel Bir Çalışma
Özgü SERÇE YÜKSELa, Neslihan GÜNÜŞENb
aDepartment of Psychiatric Nursing, Dokuz Eylül University Institute of Health Sciences, İzmir, Türkiye
bDepartment of Psychiatric Nursing, Dokuz Eylül University Faculty of Nursing, İzmir, Türkiye
Turkiye Klinikleri J Nurs Sci. 2023;15(1):236-44
doi: 10.5336/nurses.2022-92870
Article Language: EN
Full Text
ABSTRACT
 Objective: The aim of this study was to reveal common unmet psychosocial needs and strategies of coping with unmet psychosocial needs of hospitalized individual with hematological cancers and family caregiver dyads. Material and Methods: The study had a qualitative descriptive design which was conducted 12 with hematological cancer patients and family caregiver dyads. The data were collected face to face by semi-structured interview method. Interviews were conducted with a semi-structured interview form and audio recorder. Data that are obtained from the semi-structured interviews were analyzed with Braun and Clarke's thematic analysis. Results: Thematic data analysis showed four main themes. 1) Shared difficult emotions: Under the theme, dyads expressed their worries and emotions. 2) Shared social needs: Concerning the theme, dyads reported experiencing social isolation and mentioned shelter needs of the caregivers. 3) Struggling to cope with unmet psychosocial needs: Under the theme, dyads use hiding their feelings and opinions from each other, and maladaptive coping strategies like taking alcohol. Also, they expect psychosocial support services. 4) Information needs: Concerning the theme, dyads reported their information needs during the hospitalization process and after discharge. Conclusion: Individual with hematological cancers and their caregiver dyads need holistic care especially interventions about information needs and coping strategies for suffering emotions. It can be recommended that nurses perform dyadic psychosocial interventions dealing with the dyads to fulfill their common needs.

Keywords: Caregiver; hematological neoplasms; need assessment; psychiatric nursing; qualitative research
ÖZET
 Amaç: Bu çalışmanın amacı, hastanede yatan hematolojik kanserli birey ve bakım veren çiftlerin ortak karşılanmamış psikososyal bakım gereksinimlerini ve karşılanmayan psikososyal gereksinimleriyle baş etme stratejilerini ortaya koymaktır. Gereç ve Yöntemler: Araştırma tanımlayıcı kalitatif desendedir. Araştırmanın örneklemini 12 hematolojik kanser tanılı birey ve bakım veren çifti oluşturmaktadır. Veriler, yarı yapılandırılmış görüşme yöntemi ile yüz yüze toplanmıştır. Görüşmeler yarı yapılandırılmış görüşme formu ve ses kayıt cihazı ile gerçekleştirilmiştir. Yarı yapılandırılmış görüşmelerden elde edilen veriler Braun ve Clarke'nin tematik analiz yöntemiyle analiz edilmiştir. Bulgular: Verilerin analizinde 4 ana temaya ulaşılmıştır. 1) Paylaşılan Zor Duygular: Bu tema altında çiftler zor duygularından ve endişelerinden bahsetmişlerdir. 2) Paylaşılan Sosyal Gereksinimler: Bu tema ile ilişkili, çiftler sosyal izolasyon ve bakım verenlerinin barınma ihtiyaçlarından bahsetmişlerdir. 3) Karşılanmamış Psikososyal Gereksinimlerle Başa Çıkma Mücadelesi: Bu tema altında, çiftler duygularını ve düşüncelerini gizleyerek, alkol alma gibi maladaptif baş etme stratejileri kullanarak baş ettiklerini ifade etmişlerdir. Psikolojik destek beklemektedirler. 4) Bilgi Gereksinimleri: Bu tema ile ilişkili, çiftler hastanede yatış ve taburculuk süreçlerine ilişkin bilgi ihtiyaçlarından bahsetmişlerdir. Sonuç: Hematolojik kanser tanılı birey ve bakım veren çiftlerinin özellikle bilgi ve acı verici duygularla baş etme konusunda desteğe ihtiyaçları bulunmaktadır. Hemşirelerin hasta ve bakım veren çiftlerinin ortak gereksinimlerini dikkate alarak diyadik müdahaleler gerçekleştirmesi önerilmektedir.

Anahtar Kelimeler: Bakım verici; hematolojik neoplaziler; gereksinim değerlendirmesi; psikiyatri hemşireliği; kalitatif araştırma
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