Turkiye Klinikleri Journal of Nursing Sciences

.: ORIGINAL RESEARCH
Examination of Caregiver Burden, Hopelessness Level and Related Factors in Chronic Neurologic Disorder: A Descriptive Cross Sectional Study
Kronik Nörolojik Hastalıklarda Bakım Veren Yükü, Umutsuzluk Düzeyi ve İlişkili Faktörlerin İncelenmesi: Tanımlayıcı Kesitsel Bir Çalışma
Kübra YENİa , Sümeyye MUTLUb
aOndokuz Mayıs University Faculty of Health Sciences, Department of Nursing, Samsun, Türkiye
bVezirköprü State Hospital, Intensive Care Unit, Samsun, Türkiye
Turkiye Klinikleri J Nurs Sci. 2024;16(4):1289-97
doi: 10.5336/nurses.2024-103783
Article Language: EN
Full Text
ABSTRACT
 Objective: The aim of this study is to examine the caregiving burden, hopelessness level, and related factors of individuals who care for patients with chronic neurological disease. Material and Methods: This descriptive cross-sectional study was conducted from June to July 2022. The study sample was created by 105 patients with a chronic neurological disease treated in the neurology clinic of a university hospital and individuals who were primary caregivers. The data was collected by the person information form, Zarit Caregiver Burden Inventory (ZBI), and Beck Hopelessness Scale (BHS). Also, for patients, the patient information form, Modified Barthel Index, Neuroquality-Stigma Scale, and Beck Depression Inventory were used. Results: The mean ZBI score was 23.5 (±14.2), and the BHS was 5.7 (±4.9). It was determined that caregiver burden had a significant relationship with patient gender (p=0.002), income (p=0.021) and patient's diagnosis (p=0.009). The caregiving burden was higher in parents (p=0.005). There was a negative correlation between caregiving burden and patients' functional status and a positive correlation with stigma and depression levels (p<0.001). In addition, as the caregiver burden increased, the hopelessness levels of the caregivers increased significantly (p<0.001). Conclusion: It has been determined that caregivers' burden in individuals with neurological disease is related to many factors belonging to the patient and the caregiver. In addition, it was determined that as the caregiving burden increased, the level of caregiver hopelessness increased. To reduce the burden of care, it is recommended that the patient and caregivers be evaluated comprehensively.

Keywords: Neurological disorder; caregiver burden; hopefulness; stigma; depressed mood
ÖZET
 Amaç: Bu çalışmanın amacı, kronik nörolojik hastalığı olan hastalara bakım veren bireylerin bakım verme yükü, umutsuzluk düzeyi ve ilişkili faktörleri incelemektir. Gereç ve Yöntemler: Bu tanımlayıcı kesitsel çalışma Haziran-Temmuz 2022 tarihleri arasında yürütülmüştür. Çalışmanın örneklemini bir üniversite hastanesinin nöroloji kliniğinde tedavi gören kronik nörolojik hastalığı olan 105 hasta ve bu hastalara birincil bakım veren bireyler oluşturmuştur. Veriler kişi bilgi formu, Zarit Bakım Veren Yükü Ölçeği [Zarit Caregiver Burden Inventory (ZBI)] ve Beck Umutsuzluk Ölçeği [Beck Hopelessness Scale (BHS)] ile toplanmıştır. Ayrıca hastalar için hasta bilgi formu, Modifiye Barthel İndeksi, NöroYaşam Kalitesi Stigma Ölçeği ve Beck Depresyon Envanteri kullanılmıştır. Bulgular: Ortalama ZBI skoru 23,5 (±14,2) ve BHS 5,7 (±4,9) idi. Bakım veren yükünün hastanın cinsiyeti (p=0,002), geliri (p=0,021) ve hastanın tanısı (p=0,009) ile anlamlı ilişkisi olduğu belirlendi. Bakım verme yükü ebeveynlerde daha yüksekti (p=0,005). Bakım verme yükü ile hastaların fonksiyonel durumu arasında negatif, damgalanma ve depresyon düzeyleri arasında pozitif bir korelasyon vardı (p<0,001). Ayrıca bakım veren yükü arttıkça bakım verenlerin umutsuzluk düzeyleri de anlamlı olarak artmaktaydı (p<0,001). Sonuç: Nörolojik hastalığı olan bireylerde bakım veren yükünün hastaya ve bakım verene ait birçok faktörle ilişkili olduğu belirlenmiştir. Ayrıca bakım verme yükü arttıkça bakım verenin umutsuzluk düzeyinin de arttığı belirlenmiştir. Bakım yükünü azaltmak için hasta ve bakım verenlerin kapsamlı bir şekilde değerlendirilmesi önerilmektedir.

Anahtar Kelimeler: Nörolojik hastalık; bakım veren yükü; umutsuzluk; damgalanma; depresif duygu durumu
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