Turkiye Klinikleri Journal of Nursing Sciences

.: ORIGINAL RESEARCH
Assessment of the Difficulties and Care Burdens of Caregivers of Children with Complex Health Care Needs at Home: Descriptive Study
Evde Karmaşık Sağlık Bakım İhtiyacı Olan Çocuklara Bakım Verenlerin Yaşadıkları Güçlükler ve Bakım Yüklerinin Değerlendirilmesi: Tanımlayıcı Çalışma
Merve YETİMOĞLUa , Hacer KOBYA BULUTb
aTrabzon Provincial Health Directorate, Trabzon, Türkiye
bKaradeniz Technical University Faculty of Health Science, Department of Pediatric Nursing, Trabzon, Türkiye
Turkiye Klinikleri J Nurs Sci. 2024;16(4):995-1002
doi: 10.5336/nurses.2023-98916
Article Language: EN
Full Text
ABSTRACT
 Objective: The research was conducted to determine the difficulties experienced by caregivers of children with complex health care needs at home and to evaluate their care burden. Material and Methods: The primary caregivers of 55 children who were registered in the home healthcare services unit of a province in the northeast of Türkiye and who met the inclusion criteria for the study were included. In the study, data were collected by face-to-face interview method by making home visits with the information form and Caregiver Burden Scale. Standard deviation, mean value, frequency, and percentage were used in the analysis of descriptive data. Mann-Whitney U test and Kruskal-Wallis test were used to analyse categorical data. Results: The mean age of the children in the study was 11.2±5.99 years. The majority of primary caregivers stated that they had difficulties in the care of the child, respectively, in the aspiration procedure (66.6%), the use of home-type mechanical ventilators (66.6%) and tracheostomy care (61.9%). It was found that caregivers who stated that their psychological health and social relations were impacted had a higher caregiver burden and there was a significant difference (p<0.05). Conclusion: In the study, primary caregivers have difficulties in caring for children with complex health care needs at home and their average care burden is high.

Keywords: Caregivers; caregiver burden; child health; home care; nursing
ÖZET
 Amaç: Bu araştırma, karmaşık sağlık bakım gereksinimi olan çocuklara bakım verenlerin evde yaşadıkları güçlükleri belirlemek ve bakım yüklerini değerlendirmek amacıyla yapılmıştır. Gereç ve Yöntemler: Türkiye'nin kuzeydoğusundaki bir ilin evde sağlık hizmetleri birimine kayıtlı ve araştırmaya dâhil edilme kriterlerini karşılayan 55 çocuğun birincil bakım verenleri araştırmaya dâhil edilmiştir. Çalışmada veriler, bilgi formu ve Bakım Verme Yükü Ölçeği ile ev ziyaretleri yapılarak yüz yüze görüşme yöntemi ile toplanmıştır. Tanımlayıcı verilerin analizinde standart sapma, ortalama değer, frekans ve yüzde kullanılmıştır. Kategorik verileri analiz etmek için Mann-Whitney U testi ve Kruskal-Wallis testi kullanılmıştır. Bulgular: Çalışmaya alınan çocukların yaş ortalaması 11,2±5,99 yıldır. Birincil bakım verenlerin çoğunluğu çocuğun bakımında sırasıyla aspirasyon işlemi (%66,6), ev tipi mekanik ventilatör kullanımı (%66,6) ve trakeostomi bakımı (%61,9) konusunda zorluk yaşadıklarını belirtmişlerdir. Psikolojik sağlıklarının ve sosyal ilişkilerinin etkilendiğini belirten bakım verenlerin bakım verme yükünün daha fazla olduğu ve aradaki farkın anlamlı olduğu saptanmıştır (p<0,05). Sonuç: Araştırmada, evde karmaşık sağlık bakımı ihtiyacı olan çocukların birincil bakım vericilerinin çocukların bakımında zorluk yaşadıkları ve ortalama bakım yüklerinin yüksek olduğu görülmüştür.

Anahtar Kelimeler: Bakım vericiler; bakım yükü; çocuk sağlığı; evde bakım; hemşirelik
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