Turkiye Klinikleri Journal of Pediatrics

.: ORIGINAL RESEARCH
8-18 Yaş Çocuk Kanser Hastalarının Yaşam Kalitesinin Değerlendirilmesi: Kesitsel Araştırma
Evaluation of the Quality of Life of Children with Cancer Ages 8-18: Cross-Sectional Study
Asya AÇIKALINa , Edibe Rana YAZARa , Esma Nur ATEŞÇİa , Feden Nur DOĞANa , Özenç KARABACAKb , Seyhan HIDIROĞLUb , Ahmet KOÇc , Goncagül HAKLARd
aMarmara Üniversitesi Tıp Fakültesi, İstanbul, Türkiye
bMarmara Üniversitesi Tıp Fakültesi, Halk Sağlığı AD, İstanbul, Türkiye
cMarmara Üniversitesi Tıp Fakültesi, Çocuk Hematolojisi ve Onkolojisi BD, İstanbul, Türkiye
dMarmara Üniversitesi Tıp Fakültesi, Tıbbi Biyokimya AD, İstanbul, Türkiye
Turkiye Klinikleri J Pediatr. 2025;34(2):55-62
doi: 10.5336/pediatr.2025-110286
Article Language: TR
Full Text
ÖZET
 Amaç: Bu çalışmada bir hastanede tedavi görmekte olan çocuk kanser hastalarının yaşam kalitesi değerlendirilerek hem kendilerinin hem de ebeveynlerinin gözünden çocukların kanser algısının ve hastalıktan nasıl etkilendiklerinin ortaya konulması planlanmıştır. Gereç ve Yöntemler: Çalışmaya bir kamu üniversitesi hastanesinin pediatrik hematoloji ve onkoloji servis ve polikliniklerinde tedavi gören 8-18 yaş arası 50 kanser hastası çocuk ve onların bakım veren 50 ebeveyni dâhil edilmiştir. Ebeveynlerin tümü annedir. Katılımcılara 23 soruluk Çocuklar İçin Yaşam Kalitesi Ölçeği uygulanmıştır. Toplanan veriler SPSS 25.0 programı ile analiz edilip p<0,05 olan veriler anlamlı kabul edilmiştir. Bulgular: Araştırmaya 32 erkek (%64) ve 18 kız çocuk (%36) kanser hastası katılmıştır. Çocukların ve ebeveynlerin toplam ölçek puanları arasında orta düzeyde pozitif (r=0,57) korelasyon saptanmıştır (p<0,001). Çocukların ve ebeveynlerin ''sağlığım ve aktivitelerim ile ilgili sorunlar'' ve ''duygularım ile ilgili sorunlar'' alt ölçek puanları arasında orta düzeyde pozitif korelasyon olduğu görülmüştür (r=0,62 ve p<0,001; r=0,46 ve p=0,001; sırasıyla). Ancak, ''başkaları ile ilgili sorunlar'' ve ''okul ile ilgili sorunlar'' alt ölçek puanları arasında zayıf düzeyde pozitif korelasyon vardır (r=0,38 ve p<0,01; r=0,39 ve p<0,01; sırasıyla). Kemoterapi, radyoterapi ve cerrahi tedavi görmüş olan çocukların toplam ölçek puanı, diğer tedavileri almış, olan çocuklardan daha fazla bulunmuştur (p=0,015). Sonuç: Çocuk kanser hastalarının ve ebeveynlerinin psikososyal açıdan incelenmesi sağlık hizmetleri sunucuları için yaşam kalitesinin güçlendirilmesine yönelik girişimlerin değerlendirilmesi ve gerekli iyileştirilmelerin yapılması açısından çok önemlidir.

Anahtar Kelimeler: Kanser tedavi hizmetleri; çocuklar; yaşam kalitesi
ABSTRACT
 Objective: This study aims to evaluate the quality of life of pediatric cancer patients receiving treatment in a hospital and to reveal both the children's and their parents' perceptions of cancer and how they are affected by the disease. Material and Methods: The study included 50 cancer patients aged 8-18 receiving treatment in a public university hospital's pediatric hematology and oncology departments and their 50 caregiving parents. All caregivers were mothers. The Pediatric Quality of Life Inventory, consisting of 23 questions, was administered to the participants. The collected data were analyzed using the SPSS 25.0 program, and data with p<0.05 were considered significant. Results: The study included 32 male (64%) and 18 female (36%) pediatric cancer patients. A moderate positive correlation (r=0.57) was found between the total scale scores of the children and their parents (p<0.001). A moderate positive correlation was found between the subscale scores of children and parents regarding ''problems related to health and activities'' and ''problems related to emotions'' (r=0.62 and p<0.001; r=0.46 and p=0.001; respectively). However, there were weak positive correlations between the subscale scores for ''problems related to others'' and ''problems related to school'' (r=0.38 and p<0.01; r=0.39 and p<0.01; respectively). The total scale scores of children undergoing chemotherapy, radiotherapy, and surgical treatment were higher than those receiving other treatments (p=0.015). Conclusion: The psychosocial evaluation of pediatric cancer patients and their parents is crucial for healthcare providers to assess interventions aimed at improving quality of life and to implement necessary improvements.

Keywords: Cancer care facilities; children; quality of life
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